California Respite Association Mission Statement

The mission of the California Respite Association (CRA) is to support the expansion and enhancement of respite services to individuals, families and caregivers of the elderly, persons with developmental and/or physical disabilities, brain impairment and other disabling conditions (1/28/1993)

Help make this video go viral!

A two-minute video explaining how the lives of Californians with intellectual and developmental disabilities are being impacted by the low prices paid to disability service providers.

Please share on social media (Facebook, Twitter, etc.) and please feel free to send it to your networks! Tweet it to your legislators & post it to their Facebook pages! Share far & wide!

Manos Informational Video from Futures Films on Vimeo.


Thanks in advance for your continued advocacy!

DDS Rate Study Survey - Due July 6th

What it is?

This is a voluntary survey released by DDS to help gather information on provider costs and the sustainability of current reimbursement rates. ABX2-1 requires the Department to complete a “Rate Study”, at which time the department will likely recommend changes (and possibility rate increases) to existing provider reimbursement rates.

The survey will be presented as a series of Excel worksheets. One main worksheet, completed by all providers, will gather basic information. Other worksheets will be completed based on service codes. The survey will require that you organize financial and program information that you already have. Your information will not be made public. It will only be reported in combination with other provider data. Provider advocacy groups are encouraging providers who have this information to complete the survey. Watch this informational video for a brief overview:

Who is asking for the survey information?

The Department of Developmental Services through a contracted company, Burns & Associates.

When is it due?

The Tentative Due Date for the Survey is Friday, July 6th, 2018

What you need to complete the survey?

Where do I find the survey?

Download the survey and instructions by typing the following link:

How can I learn more?

ACRC and the ACRC Provider Advisory Committee (PAC) will be holding informational meetings. To register for one of these dates/times listed below, please follow this link Class Register.

Scheduled Meetings (in ACRC’s Brenda Smith Conference Room):

Tuesday June 12th, 10am-12pm or
Thursday, June 21st, 1pm-3pm

Front row: Sofia. Back row left to right: Sean, Michael, Joy, Diane and Maureen.

2018 Board of Directors & Officers

Joy Scott
Co-President for Northern California

Michael Foster
Co-President for Southern California

Maureen Wright
Vice-President for Northern California

Sofia Campos
Co-Vice President for Southern California

Sean Stone

Diana Hernandez

- click for more details and contact info -

Cal Respite

FAQ on January 2018 Respite Changes

1. What changed with respite?

Answer: The State lifted the 2009 restriction which capped In-Home-Respite authorizations at 90 hours per quarter and Out-of-Home Respite at 21-days per fiscal year. All Regional Centers are required to update their policies to reflect the Respite cap removal. There are no existing regulatory guidelines surrounding respite hours/days; therefore, each Regional center can set their own Purchase of Service guidelines.

2. Why was this change enacted?
Answer: To address Purchase of Service (POS) funding disparities. Respite is cited over and over again by families as the number one service they need. Respite allows families to care for their loved ones in their own home providing a more personalized cost-efficient level of care. The State believes that removing the quarterly cap on respite usage will give families of all ethnicities greater flexibility in how their respite care is received.

3. If my family is authorized for 30 hours/mo or less, can we now use more than 90 hours/quarter?
Answer: Yes, depending on the policies of your Regional Center and your Respite agency. Some Regional Centers (RCs) have policies that allow families to pre-use their respite hours within the same fiscal year, and some RCs only allow monthly usage and require changes to authorizations whenever a family wishes to exceed their monthly authorized hours.

4. If my family is already authorized for more than 30 hours/mo, is anything changing for us?
Answer: The Respite cap removal does not automatically change your existing authorization. Some Regional Centers may choose to hold planning team meetings to review existing authorizations in light of these changes. When your authorization ends and is renewed, the renewal should reflect your Regional Center’s updated respite policies. Each Regional Center is required to post their policies on their website.

5. Can my family now qualify to receive more respite hours per month?
Answer: The intent of the cap removal is to allow families to access more respite hours. If your needs have changed and your family could benefit from more respite, contact your Regional Center Service Coordinator to discuss your needs.

6. Does the Respite cap removal change anything related to existing labor laws regarding caregiver overtime, paid sick leave and travel time?
Answer: No. If your respite will be increasing, contact your Respite agency to discuss how to best meet your needs and if an additional caregiver may need to be hired/referred to your family.

7. If my family wants to use our respite hours to go away for a few days, is this now allowed?
Answer: Check with your Regional Center and Respite agency as policies vary widely.

8. Do I still need to carefully track my respite hours?
Answer: Yes! Families who direct their Respite Caregivers to work beyond their authorized hours and/or beyond the hours approved by their Respite agency have acted as their employer and will be responsible for paying those hours to the employee or the agency, depending on agency policies.

9. If my family has Enhanced/Behavioral Respite, does this apply to us?
Answer: This may vary by Regional Center. Contact your Service Coordinator and Respite agency.

10. Does FCPP still apply?
Answer: Yes – no changes have been made to the Family Cost Participation Program.

Authors: CRA Member Kevin Rath and Sharon Francis
Approved by the CRA Board of Directors
History of the California Respite Association (CRA)

The California Respite Association, originally named the Respite Services Association of California, was incorporated in 1982.  It was clear from the beginning that it would be a grassroots advocacy and respite focused association.  In the early years, UCP of Sacramento and Northern California had a major leadership role with the organization as did a small number of other California based respite organizations such as the Arc San Diego, Plumas Respite Services, SummerHouse, Family Support Services of the Bay Area, Tri-County Respite Services (now Tri-County Caregiver Relief Services, and Bay Area Family Services (now Bay Respite Care). 

Many of the early Board Officers were key staff members of the above organizations.  Many of the key names from the above organizations were Tanya Hartle, Lyn Zarick from UCP; Dianne Rose from Tri-County, Laurie Zell, then Mike Huckins  and Don Morgan with Bay Area Family Services and Bay Respite Care, Judy Levin from Family Support Services, Ann Greenhill from SummerHouse.  Many of us served multiple terms in our various officer positions.

In 1990, both a $.81 an hour wage differential for Respite Direct Service Professionals as well as a mileage reimbursement based on what State employees receive were instituted by the Department of Developmental Services.  It quickly became apparent that maintaining both of these would be difficult at best every time the State Employees mileage reimbursement changed and the minimum wage went us from the base year of $4.25 per hour ($5.06 per hour Respite Direct Service Professional pay).  CRA has remained ever vigilant in our efforts to preserve the precedent of both mileage and the wage differential. 

In the early 1990s CRA had both semi-annual meetings for all membership as well as northern and southern California regional meetings in between the annual meetings.  As time went on, it became more difficult to find the leadership to continue the regional meetings so we began providing travel stipends to increase attendance at the annual meetings.

In the late 1990s, we sent CRA representation to the DDS System Reform meetings.  These meetings lasted for several years until DDS realized that any increased expectations related to staff training would require an increase in the funding for direct service professionals.  CRA advocated for a reduced level of additional training as most of our Respite Providers are very part-time.  Because of the lack of funding available, the community service providers walked away from the Service Reform meetings.

In the late 1990s, CRA also instituted the first year membership free.  Through this, we were able to increase our membership from approximately 20 members to over 35 members.  It was around this time that we began a campaign to increase the wages of our Respite providers.  This included our famous visit to the governor’s office with “oversized cookies that had respite written on top”. During this visit, we befriend Peggy Collins and Diane Van Maren, staffers who became very helpful in teaching us about the legislative process.

In the early 2000s, the economy improved and our campaign for a rate increase gathered traction.  It wasn’t until 2006 when, thanks to the entire advocacy communities efforts, that a 3% rate increase was approved.

On a national level, 2006 was also the enactment year of the Lifespan Respite Act which would create systems of coordinated respite care statewide.  Many of us began attending the national conferences in hope this would enhance our growth here in California.  This led to CRA hosting the 2009 Lifespan Respite Conference in Burbank—the first year of a dozen or so states receiving three, $200,000 Lifespan Respite grants each.  We held a California Respite Summit and hoped to generate interest at the State level.  Unfortunately, the grant writers at the State level decided that it would not be worth the effort for California to apply for less than a million dollar grant.  Although many additional Lifespan Respite Grant Cycles have passed since then, California remains one of the minority states to apply.

During the late 2000s, we had the inspired notion of hiring staff, especially a lobbyist to help us with our efforts.  Dues were increased fourfold to help accomplish this.  Although this added much needed resources to help fund activities like the conference, it became clear that we would never have the critical mass to continually fund a staff driven organization.  We approached the California Disability Services Association and CAHSAH, the Home Health Association with some respite members to consider a collaborative effort with our advocacy.  The latter wanted to absorb our small association after a two year period, so we chose to align ourselves with CDSA.  They created a specific “Respite Affiliate” members status that had one vote in exchange for our having at least 10 members that perform at least 80 percent respite services.  After a couple of orientation meetings, we were able to recruit the 10 members with the help of CRA’s offer to rebate the CDSA Respite Affiliate membership dues up to the annual $450 fees.  We have maintained this rebate to create a constant respite presence since then.

Of late, our constant effort has been to keep up with the tremendous number of new unfunded mandates: minimum wage, overtime, affordable care act, large employer fees for Respite Employees on MediCal, etc.  In 2013, we joined the Lanterman Coalition so that we can have a common voice with all of the other advocacy groups for community-based services. 

And that brings us to today, where we need to recommit to our grassroots efforts through increased membership.  We need every respite organization to consider joining or rejoining us to keep respite in the forefront of our State decision-makers thoughts.  Our Respite families and their Respite providers are counting on us!